Actor Colin Farrell has opened up about the difficult decision to move his son James, who has Angelman syndrome, into a long-term care facility. In an interview this week the actor, 48, revealed he ...
A rare genetic condition leads to developmental difficulties, happy disposition. Oct. 22, 2008— -- Six-year-old Ryan Ravellette is a happy and sociable child; he has a smile that can light up a ...
(COLORADO SPRINGS) — When a child is born, so is a whole host of hopes and dreams. “When you hold your child for the first time, the first time you hear their cries… you play out their lives ...
Colin Farrell and his ex Kim Bordelave have made the difficult decision to put their 21-year-old son James, who has Angelman syndrome, in care. The Irish actor explained he wanted to find somewhere ...
NISSWA — Two bicyclists are embarking on a 4,200-mile trip across the country for a deeply personal cause. Known as “Bike 4 Briar,” the team includes Todd Downey and Charlie Nuck, who seek to raise ...
MONTROSE, Mich. (WJRT) - A Mid-Michigan family is raising money to help their 6-year-old boy with a rare genetic disorder. After spending a few months looking for action figures and fun items, Kristin ...
Rebecca Burdine knew something was wrong the day her baby girl was born. Sophie was born without a natural sucking reflex, making it nearly impossible to eat. Later, it became clear that she had ...
SARASOTA, Fla. and NOVATO, Calif., Jan. 15, 2020 (GLOBE NEWSWIRE) -- GeneTx Biotherapeutics LLC and Ultragenyx Pharmaceutical Inc. (NASDAQ: RARE), a biopharmaceutical company focused on the ...
Kathryn Ely remembers every detail from the process of her son being diagnosed with Angelman Syndrome, a rare genetic disorder that causes developmental delays, intellectual disabilities, seizures and ...