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I quite literally had tell them what he had. They kept saying it happened by random mutation and it’s VACTERL association. Once I saw his eye had a Coloboma I just knew it wasn’t that. Googling his symptoms 100% was CHARGE. CHARGE is an acronym that stands for “C”oloboma, “H”eart, “A”tresia, “R”restricted growth, “G”enital, “E”ars! When I was pregnant we knew about James’s heart condition that was it his amnio came back “normal”. When he was born we discovered his esophageal atresia and TEF and
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